Economic Pressure, Quality of Life & Neurological Illness
By Richard Shank
New research examines the predictors of economic pressure and quality of life (QOL) among people with a range of neurological illnesses. The research confirms that neurological illnesses are associated with significant cutbacks in spending, which, in turn, lead to reduced QOL. Specifically, the researchers found that people living with neurological disorders with a long duration of illness, a higher number of illness-related expenses, and a high level of cutbacks in spending were the most likely to experience significant drops in QOL.
The illness groups included in the study were motor neuron disease, Huntington’s disease, multiple sclerosis, and Parkinson’s disease, all of which are known to lead to serious impairments in physical movement, cognitive functioning, and psychological health and are typically progressive and unpredictable in their progression rate. Research has demonstrated that the impairments and unpredictable disease course produces considerable economic uncertainty for both the individual living with the illness and his/her caregiver(s). Reducing or stopping paid work and an increase in the costs associated with illnesses (e.g., medication, equipment, health care, etc.) impact the financial position and overall QOL of both.
The impact that changes in work status have on the caregiver and person living with a neurological illness depends on their financial situations. People who are experiencing health setbacks routinely have easier access to help and resources that prevent premature disease progression and help them maintain a high QOL.
The findings indicate that people living with persistent and progressive neurological conditions need considerable assistance in helping them adjust to their ever-changing financial situation. But helping people who live with neurological disorders tailor their activities to their personal preferences within the limits of their financial constraints is a complex task. With an unpredictable disease course, long-term financial planning is difficult. Caregivers will need to respond quickly to the changing signs of illness and the accompanying financial burdens.
Source: McCabe, M. O’Conner, E. 2009. A longitudinal study of economic pressure among people living with a progressive neurological illness. Chronic Illness 5:177-183.
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